DCC Awareness Day

DCC Awareness Day Global Celebration

hosted by National Organization for Disorders of the Corpus Callosum (NODCC)

9:00-9:30 pm GMT (July 2)
Join us for the first Global Celebration for DCC Awareness Day! This fun, virtual session will be hosted by Texas radio DJ, Zac Grantham, and will bring together people from around the world who are living with and loving someone with a disorder of the corpus callosum. It will be late in some parts of the world and very early (the next day) in others so you can join anytime during the 30-minute window of the celebration. The missing connection is what connects us, and we canít wait to say hello on this special day!

Download a sign to tell us where you are connecting from.

World Disorders of the Corpus Callosum Awareness Day

The 2nd of July is celebrated as the World Disorders of the Corpus Callosum Awareness Day. But do you know what that is?

Just like the second day of July divides the year into two halves, the corpus callosum is the central structure and the main route of communication between the two brain hemispheres. Among the most common congenital malformations, the Dysgenesis of the Corpus Callosum (DCC) is a neurodevelopmental disorder characterized by the total or partial absence of the brain central structure, and the theme attracts special attention from doctors and scientists. The condition affects thousands of people around the world, but it's difficult to have accurate statistics about patients since symptoms range from asymptomatic cases to epileptic seizures and psychomotor development retardation.

The disorders of the corpus callosum, however, shed light on the investigation of neuroplasticity, which are the adaptive abilities the brain exposes once faced with adversities. By presenting malformations in the structure that connects its hemispheres, the brain with the absence or underdevelopment of the corpus callosum creates alternative neural pathways, seeking to compensate for its congenital hardships. This may be beneficial or not, which explains why there is a wide range of symptoms among patients with DCC.

Seeking to investigate these disorders, it was created the International Research Consortium for the Corpus Callosum and Cerebral Connectivity (IRC5), an organization formed by researchers and doctors all over the world, whose mission is to discover the causes, consequences, and possible effective interventions for DCC and associated brain connectivity disorders.

The IRC5 also holds a periodic event, the Cortical Connections, that shares information between health professionals, patients, and family members involved in the theme. In 2021, the international meeting is being organized by the D'Or Institute for Research and Education (IDOR) and takes place between June 27th and July 2nd.

Click here to check the program. The meeting will be completely online, with lectures and presentations on genetics, fetal development, experimental models, brain morphology, imaging, and neuropsychology.

If you are interested in participating, free registration is open.





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